Parents of Hong Kong’s ‘Girl Behind the Face’ share their story for the first time

25/02/2026 2 Views

Mui Thomas is, by any measure, a remarkable woman.

Now 33, she is believed to be the world’s fourth-oldest survivor of Harlequin ichthyosis. This extremely rare genetic disorder causes the body to be covered with thick plates of skin – a condition so severe that when Mui was born in Hong Kong in 1992, it was considered universally fatal.

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