Living with neurofibromatosis: How one woman helped build a support community in Singapore

Living with neurofibromatosis: How one woman helped build a support community in Singapore


For the first time in her life, Sutawijaya was surrounded by other people with NF, and she was struck by a sense of belonging.

The experience also shifted her mindset. For a long time, she had asked herself: “Why me? Out of thousands of people, why am I the only one who got NF?

“But a few years back, I started asking, why not me? Everyone runs their own race and we all have our own struggles in this life. Since I’ve been given NF, how can I finish running my race more positively?” she said.






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