‘A chance we once only dreamed of’: Baby with rare genetic disorder successfully receives $2.4m treatment, Singapore News

‘A chance we once only dreamed of’: Baby with rare genetic disorder successfully receives .4m treatment, Singapore News


After successfully raising the $2.4 million needed to save their child from a rare genetic disorder, baby Faziq finally received treatment last Wednesday (April 22). 

His mother, 35-year-old Norhaziqah Rosli told AsiaOne on Monday (April 27) that Faziq — who was born with Spinal Muscular Atrophy (SMA) which causes muscles to weaken over time — responded well to the one-time Zolgensma gene therapy and is being closely monitored as he recovers. 

She shared that Faziq is currently back home but still has to go for follow-up visits weekly at the hospital to ensure everything is progressing well.

“As a family, we felt incredibly grateful and relieved. It has been a long and emotional journey, and we’re truly thankful that Faziq has been given a chance we once only dreamed of,” added Norhaziqah.

The family announced the news in an Instagram post on April 24 with a photo of Faziq and captioned: “At this stage, we are focusing on his recovery and close monitoring. After the treatment, regular follow-ups, medications (such as steroids), and blood tests are needed to ensure everything remains stable.

“We will continue to keep him safe at home and are taking things one step at a time as he begins this new chapter. Thank you for your continued prayers, love, and support!”

In another Instagram post on Monday, the family shared a photo of Singaporean businessman David Yong, who was featured in Netflix series Super Rich In Korea, with Faziq. 





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